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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Sotos Syndrome near Ann Arbor, MI. Of these, 10 are Experienced, 2 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    14 providers found
      Distinguished in Sotos Syndrome
      Endocrinology
      Distinguished in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joanna Spencer is an Endocrinologist in Ann Arbor, Michigan. Dr. Spencer is rated as a Distinguished provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Ectopic Cushing's syndrome, Cushing's syndrome due to Adrenal Tumor, Cushing's syndrome, and Exogenous Cushing's syndrome.

      Distinguished in Sotos Syndrome
      Endocrinology
      Distinguished in Sotos Syndrome
      Endocrinology
      1500 East Medical Center Dr, 2nd Floor Taubman Ctr Recp G, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Ariel Barkan is an Endocrinologist in Ann Arbor, Michigan. Dr. Barkan is rated as a Distinguished provider by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Acromegaly, Pituitary Tumor, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Acromegaloid Facial Appearance Syndrome, and Hormone Replacement Therapy (HRT).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Sotos Syndrome
      Endocrinology
      Advanced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Liselle Douyon is an Endocrinologist in Ann Arbor, Michigan. Dr. Douyon is rated as an Advanced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Thyroid Nodule, and Juvenile Primary Osteoporosis.

      Learn about our expert tiers
      Advanced in Sotos Syndrome
      Endocrinology
      Advanced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Zahrae Sandouk is an Endocrinologist in Ann Arbor, Michigan. Dr. Sandouk is rated as an Advanced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), Thyroid Nodule, and Addison's Disease.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Shafaq Khairi is an Endocrinologist in Ann Arbor, Michigan. Dr. Khairi is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hyperaldosteronism, Familial Hyperaldosteronism, Multiple Endocrine Neoplasia Type 1, and Hyperparathyroidism.

      Experienced in Sotos Syndrome
      Experienced in Sotos Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Maria Papaleontiou is an Endocrinologist in Ann Arbor, Michigan. Dr. Papaleontiou is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Thyroid Cancer, Thyroid Nodule, Hypothyroidism, Thyroidectomy, and Hormone Replacement Therapy (HRT).

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Adina Turcu is an Endocrinologist in Ann Arbor, Michigan. Dr. Turcu is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hyperaldosteronism, Congenital Adrenal Hyperplasia (CAH), Intersex, Adrenal Gland Adenoma, and Hormone Replacement Therapy (HRT).

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jennifer Iyengar is an Endocrinologist in Ann Arbor, Michigan. Dr. Iyengar is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Thyroid Nodule, Paget's Disease of Bone, and Type 2 Diabetes (T2D).

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Yu Lin is an Endocrinologist in Ann Arbor, Michigan. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Low Blood Sugar, Type 1 Diabetes (T1D), Type 2 Diabetes (T2D), Pancreatectomy, and Islet Cell Transplantation.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology
      24 Frank Lloyd Wright Dr, Lobby C Suite 1300, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English

      Eleni Dimaraki is an Endocrinologist in Ann Arbor, Michigan. Dr. Dimaraki is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Familial Glucocorticoid Deficiency, Glucocorticoid Resistance, Hypoaldosteronism, and Parathyroid Hyperplasia.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Cristina Alvardo is an Endocrinologist in Ann Arbor, Michigan. Dr. Alvardo is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Toxic Nodular Goiter, Thyroid Storm, Type 2 Diabetes (T2D), and Low Blood Sugar.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Preethi Gogineni is an Endocrinologist in Ann Arbor, Michigan. Dr. Gogineni is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. Her top areas of expertise are Hyperparathyroidism, Type 1 Diabetes (T1D), Gestational Diabetes, and Osteoporosis.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy.

      Experienced in Sotos Syndrome
      Endocrinology
      Experienced in Sotos Syndrome
      Endocrinology
      24 Frank Lloyd Wright Dr, Lobby C Suite 1300, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English

      Craig Jaffe is an Endocrinologist in Ann Arbor, Michigan. Dr. Jaffe is rated as an Experienced provider by MediFind in the treatment of Sotos Syndrome. His top areas of expertise are Kallmann Syndrome, Sheehan Syndrome, Growth Hormone Deficiency (GHD), and Isolated Hypogonadotropic Hypogonadism.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Sotos Syndrome?

      Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development of mental and movement abilities. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.  In addition, the outside corners of the eyes may point downward (down-slanting palpebral fissures). This facial appearance is most notable in early childhood. Affected infants and children tend to grow quickly; they are significantly taller than their siblings and peers and have an unusually large head. However, adult height is usually in the normal range.

      When should I see a Sotos Syndrome doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sotos Syndrome doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sotos Syndrome doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sotos Syndrome doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sotos Syndrome doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sotos Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sotos Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sotos Syndrome doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sotos Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sotos Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sotos Syndrome doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Sotos Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sotos Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sotos Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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